"...Ginny Dieruf, Levi's and Cody's mother, drove in from
"Cystic
Fibrosis is About LIVING, Not Dying"
She left this world at 23 yrs old.
She left behind a wonderful father whom she adored. A father
who supported her through out her life. A father who bragged
about her every move, and who showed off her pictures to all he knew.
She left behind the best brother that a sister could ever want.
She was very close to her brother. He was her confident,
her stability, her strength. He gave her laughter and advice,
he gave her friendship and love. But little did she know
that she was the one who gave to us, courage and strength. She
had a colossal amount of friends. She touched everyone that
she had came into contact with in her life. Cody left behind
a legacy of love. She did not let this disease get in her way
of living. She refused to do that...
Cody once said,
“If I could only have one day to know what it was like to walk
down the street and breathe. If I could only have one day
to know what it would be like to be free. No oxygen, no medicines,
no pounding of my back and chest, no shortness of breath, no stomach
aches, no sinus pain, free from headaches, and muscles and joints
that move freely without pain, no hospitalizations, no surgeries,
no restrictions. Just one day to be free and than I would go back
to the special reward of Cystic Fibrosis.”... But she said, “when
I fall, I will get back up” Because I am the victor not the victim....
These children and young adults have Cystic Fibrosis, but it is not who they are. Yes, it will shape those with the disease, because it is part of there lives. They do not want to live in fear, in fear that their lives may be cut short, in fear that they will one day leave there loved ones behind. These children are not victims, folks, they are the victors. They will triumph in this physical battle with your help and your support. Our children are our future, so please, “Give so they can Live.” There is no reason they should live in fear. Research centers all across the country are working diligently to find a cure. Through this a life is extended. Through research new and stronger medicines are being developed, and genetic testing is done consistently. And one day a cure will be just around the corner to save our children.
